A beautiful life. An immeasurable love. A legacy that continues.

March 8, 2013 – June 5, 2026

Ali was a beloved son, brother, and deeply cherished member of his family. Full of laughter, joy, and an unforgettable smile, he had a beautiful way of bringing happiness to everyone whose life he touched.

A seventh-grade student at Wisdom Lane Middle School, Ali loved soccer, baseball, spelling, traveling, and experiencing the world with his family. He carried an unmistakable light and found joy in life's simplest moments. Through simply being Ali, he taught those around him the truest meaning of unconditional love, patience, strength, and finding happiness in the everyday.

Faith was also a meaningful part of Ali’s life and journey, shaping many of the experiences and memories his family holds close.

Ali lived with NGLY1 Deficiency, an extremely rare genetic disorder, and later Lennox-Gastaut syndrome (LGS), a severe form of epilepsy. Yet these diagnoses were only a small part of his story and could never define the extraordinary person he was.

This website was created to celebrate Ali’s life, preserve his beautiful memories, raise awareness about NGLY1 Deficiency, and share the acts of love, kindness, and charity that continue in his name.

Ali’s love lives on. His legacy continues.